I had heard rumors that follow up care was going to be an issue for those of us who went abroad for treatment but, I honestly couldn't believe it.
I went to my dr. yesterday, he wasn't too impressed that I had treatment in Poland, but he did write my my rx for blood thinners and requests for my follow up doplar on my left jugular, and for my thyroid (they found a cyst in poland). His nurse tried for 20 min. to book my appointments with the imaging lab and gave up in frustration. She was talking to me at the same time and telling me what she was being told... "we do not scan jugular veins!" I said nonsense, they do this for dialasys patients and others all the time.
she finally gave up in frustration, gave me the forms and the number to call them myself. I drove home infuriated and disgusted that I had to fight one more battle. Believe me I was NOT impressed. I called the number, and when I started to get the same nonsense I interrupted the woman on the line.
"this is NOT for dx, it's a post surgery follow up!" Then I got my appointments.....phew!! All the time things were running through my head such as if you don't give me an appointment I want the reason in writing, is this grounds for a law suit....all those fighting things.
the test will be 2 weeks later than I was supposed to have it, but at least I have it for now. I hope that chatting with the radiologist will spread more information to that area of professionals, and get them to honestly look at what we're fighting for.
I went for a thyroid blood test before I saw the dr. and the lab tech that drew my blood was so supportive. She's looking out of country for treatment for something else. What has this country come to that we have to flee to europe and all over the world to get the care we paid taxes for all these years?
I want to take a moment to also encourage and thank those who come to our political meetings, who are very advanced and not in good health. Your bravery is exceptional! I understand how hard it must be to watch others regaining functions when you can't have the treatment yet. But believe me, your efforts are so very important, and make a HUGE statement in the fight for liberation. I can't thank you enough!
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Hi Brenda, Will they have the experience to check the stent for proper blood flow? So you had a blockage on only one side, but symptoms on both sides. Is that correct? I posted a comment for your 11 days after liberation, but somehow it ended up under Liberation day. I worry about follow up. Thanks for sharing your story.
ReplyDeletehi, well I hope they have the ability. It's a stent and they should be able to find it. It's to make sure that it hasn't moved, no blood clots and that the blood flow is ok. I realized now looking at the first one from FC (the one they said was 'normal') that the blood flow was restricted as I found out in Poland.
ReplyDeleteYes, symptoms on both sides, but blockage in one Jugular. Thing is, there are more and more venous areas showing importance, and I figured at least I have a lot of relief, cog fog gone, fatigue gone, etc. so if they do figure out more areas and better ways of testing, I'll go back.
When you come back, just do what I did and remind them it's for post op follow up, not for dx. I think we're gaining ground slowly. If worst comes to worst, we go to emergency,