So, today is my one month birthday since having a stent put in my jugular in Poland. I'm still doing WAY better than I was pre procedure, but I've had some backslide days. I still have clearer congnition, speaking, almost no fatigue to deal with. But, I've over done it, kind of hit the ground running with meetings (3 in just over a week) to try and further the cause for treatment in Canada. That has brought it's own frustration. After going to a meeting with one minister, I was told I would be asked to go to another, with his 'expert advising doctors' within 2 weeks. Well Tuesday is 2 weeks and I have a feeling it isn't going to happen. I've been enjoying my grand babies so much, I babysat, over night....twice! So, I've snuck away up north for a bit to try and catch up on some rest and let my body heal some more.
Oh, yes, I can't forget to mention, the hearing continues to improve which is good most of the time....hubby's doing renos need I say more? There were times when being deaf in one ear, partially in the other came in handy with some head phones
My sense of direction for where sound is coming from is improving but not perfect yet. I also think my eyes may have improved (really need an eye appointment) since my glasses are driving me nuts and I've had some low grade head aches at the back of my head. Since I noticed these improvements, someone sent me a study saying that ballooning the jugular has been an accepted treatment for hearing and vision problems....so much for 'new'!
Crutches continue to stare at me from the corner, gathering dust....poor things.....they can stay lonely! My balance is so much better, but is off a bit the past couple of days. I haven't had lyrmett's sign at all since I returned home, and my right had is about 60% better although my left is the same. Dr. Kostecki said that made sense since the left jugular affects the right hand. Still, it would be great to get the feeling and dexterity back in my hands.
MS hug continues to be an issue. Someone told me once, or I read somewhere (the past few months have been the normal MS blur) that the dreaded hug is connected to azygos involvement. When i was on the table, I did ask the doctor performing the angio, if he ballooned my azygos. His reply was "there was a physiological abnormality, we can get the wire in but not the balloon, but we think the blood flow is adequate". hmmmmm, yup I said hmmmmm, I'm not convinced that I don't have an issue with the Azygos at all. It seems that most who have had this ballooned have had function and feeling returned to their hands, and the MS hug go away. So, I'm waiting for a follow up, preferably by someone who knows what to look for of course (NOT where I went for my first scan), and then perhaps go somewhere to have this dealt with. I'm wondering if because I was part of a study, if they only dealt with Jugular blood flow issues. I haven't heard from anyone who went to the same clinic, having their azygos ballooned. There were 25 patients in the past 2 weeks that were treated, which is way more than they had been doing, but not one has gotten back to me about azygos ballooning. I did have a good look finally at my scan disks, making copies for another clinic. I of course am not a radiologist, but if what I saw is the azygos, there are 3 significantly narrowed, flat spots.
My legs remain strong most of the time, but when I over did it babysitting, I did wake up to rubbery legs which scared the @#$ out of me. They seemed to return to 'normal' with a bit of rest. so....lesson to be learned....don't over do it!! I understand it takes time to heal and that changes can keep slowly happening from 3 months to a year after procedure, but of course I'm impatient. The MonSter has stolen enough of my time and quality of life!
